Navigating The Government

Determine Eligibility:

1. 1. Contact the Division of Developmental Disabilities (DDD): Start by contacting the Illinois Department of Human Services’ Division of Developmental Disabilities (DDD) to determine eligibility for services.
   2. Assessment: You may need to complete an assessment to determine the level of need and type of services required.

PUNS (Prioritization for Urgency of Need for Services) Enrollment:

1. 1. 1. Enroll in PUNS: The PUNS database helps the state prioritize individuals for services based on their urgency of need. Contact your local Independent Service Coordination (ISC) agency to get enrolled.
      2. Regular Updates: Ensure the PUNS information is updated regularly, as changes in circumstances can affect prioritization.

Independent Service Coordination (ISC) Agencies:

1. 1. 1. Find Your Local ISC: ISC agencies provide case management and can guide you through the process. They can be found through the Illinois Department of Human Services website.
      2. Work with an ISC: Your ISC will help develop a Service Plan, connect you with resources, and assist in navigating the system.

Apply for Medicaid:

1. 1. 1. Medicaid Application: Many services for individuals with I/DD are funded through Medicaid. Apply for Medicaid if you haven’t already. You can apply online, by mail, or in person at a local DHS office.

Explore Service Options:

1. 1. 1. Home and Community-Based Services (HCBS) Waivers: Illinois offers several HCBS waivers that provide services to individuals with I/DD. Your ISC can help determine eligibility and apply for these waivers.
      2. Community-Based Services: Services can include residential support, day programs, employment services, and respite care.
      3. Service Plan Development:
      4. Person-Centered Plan, aka Individual Service Plan (ISP): Work with your ISC to develop an ISP that outlines the services and supports needed. The ISP should be person-centered and reflect the individual’s goals and preferences.

Accessing Services:

1. 1. 1. Service Providers: Identify and choose service providers that meet the needs outlined in the ISP. Your ISC can provide a list of approved providers.
      2. Monitoring and Adjusting Services: Regularly review the services being provided to ensure they meet the individual’s needs. Adjustments can be made to the ISP as necessary.

Advocacy and Support:

1. 1. 1. Advocacy Organizations: Connect with advocacy organizations such as The Arc of Illinois, which can provide additional support and resources.
      2. Family Support: Engage with support groups and networks for families of individuals with I/DD for shared experiences and advice.

Stay Informed:

1. 1. 1. Ongoing Education: Stay informed about changes in state policies, funding, and available services. Attend workshops, webinars, and meetings hosted by advocacy groups and state agencies.

Appeal Rights:

1. 1. 1. Understanding Your Rights: If services are denied or reduced, understand your right to appeal the decision. Your ISC can guide you through the appeals process if necessary.

By following these steps and leveraging available resources, you can navigate the Illinois government system to access the necessary services and supports for individuals with I/DD.