Advocate
There are many ways you can help get the message to our state and federal legislators and decision-makers about the critical issues facing the IDD community.
The Issues
While we are continually keeping watch on all state and federal legislation that impacts the I/DD professionals and staff, as well as the people they serve, there are certain issues of primary concern.
Direct Support Professional (DSP) Wages
They Deserve More is a statewide coalition that fights for fair wages for frontline workers in the intellectual and developmental disability community. Visit their website for fact sheets, updates, and information about how you can help advocate for this important cause.
Transition Programs for 22+ Young Adults
It’s no secret to those in the IDD community that when young adults age out of state-provided programs on their 22nd birthday, they have very few options for residential services, employment, or economic stability, not to mention meeting their needs for behavioral, mental health, and other supports. Children’s residential service providers in Illinois have formed a coalition to advocate on this issue, held legislative information sessions in Springfield, and developed proposed legislation. The coalition maintained pressure on the state for continued person-centered funding and consideration of a new service line to provide residential options for young adults with the highest support needs.
Medicaid
In Illinois, 1 in 3 people with intellectual and developmental disabilities (I/DD) rely on Medicaid for their long-term care and support needs. It is a lifeline for the people and families throughout the country. With the federal government considering cuts to this vital program, we are watching developments very closely and working side-by-side with our advocacy organizations to make our voices heard.
If you would like to tell Congress to prevent devastating cuts to Medicaid funding, click below.
CILA Rates
Declining reimbursement rates from the State of Illinois for Community Integrated Living Arrangements (CILAs) have created significant budget shortfalls for providers. We continue to fight for fair rates that will allow us and other agencies to continue to provide safe and nurturing home environments for adults with intellectual and developmental disabilities.